End-Stage Renal Disease

Paper Summary:

This paper is a proposed study to examine the "lived experience" of adolescents with end stage renal disease (ESRD). The research compiles and organizes the perceived experiences of young people (13 to 16 years of age) as they relate to living (and in some cases dying) with ESRD. The lived experience approach consists of the collection of narrative accounts (through semi-structured interview processes) of patients experiences of a given illness. In order that the proposed research may be fully understood, it provides some background information on ESRD in the adolescent population.

Outline
Introduction
Purpose
Significance
Review of the Literature
Methods
Research Approach
Human Subjects
Data Gathering Methods
Informed Consent
Budget
Appendix A
Appendix B

From the Paper:

"The physical and medical demands of renal disease on children and their parents have been studied and understood for many years now (Stover, 1994). However, very little focus has been placed on one other very important part of the disease, namely the actual day or day perceptions of the children regarding the effects of the disease upon their bodies, minds and spirits. This study, by examining the phenomenological aspect of the disease is significantly in that it contributes to an under-researched area of the literature. Moreover, the findings of this study can be used by health care workers as well as policy makers to better meet the entire range of needs (mental, emotional and physical) experienced by children with this condition."

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